Check out @jamesconnell819 incredible first six months of training, full video on our youtube channel: Emzfit
#BlindSport #Blind #Boxing #BlindBoxing #weightlosstransformation #Strong #accessiblesport #blindandpartiallysighted
Another highlight from our latest boxing transformation, watch the full version on youtube: Emzfit #boxing #blindsport #boxingtraining #speedball #boxingcoach #blindboxer #accessiblesport #emzfit #boxingfitness #weightlosstransformation
ALL ages & levels of #baking are encouraged to join in the #bakingfun 😀
A Disney bake for #meawarenessday classic chocolate chip muffins & triple chocolate cookies with a twist #dairyfreebaking by Grace & Emilio @smileforme a special bake for a special day 💙 WWW.BAKE4MECFS.COM link in @bake4mecfs bio!
Big incentive reminder to get your bake on! A fantastic prize 🏆 plus you’ll be raising awareness for a good cause & supporting @smileforme 💙 #mecfs – The Disney Bake Off in honour of #merryncrofts
Thank you so much 🙏 @lobbakes for being a baking buddy to @lizzyh_rn bringing this wonderful cake to life! #disney #baking
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We are so grateful 🥹 💖 to every single entry. If you want to be included but your chronic illness/disability is getting in the way please reach out to @bake4mecfs OR if you fancy yourself to be a collaborative baker we’d love to have you on board!
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All info on the website WWW.BAKE4MECFS.COM
We want everyone to know they’re included in our bake off’s and to accommodate our wish we offer to find a collaborative baker/baking buddy for you – more info on our website – and we also accept previous bakes! #bakingathome #disneylove #mecfs
An incredible entry by @living.life.with.m.e #disneycake #bakersofinstagram ❄️🧊👑
Happy #bluesunday #bluesunday2024
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We had our lunch in the garden today ☀️ 🪴 💐 sea bass & creamy leek & mushroom rice with garlic, ginger, rocket (freshly grown!) & blue edible glitter ✨ of course; donation made to @smileforme #mecfsawareness
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This particular event is very dear to my heart 💙 & @theslowlane.me is a true inspiration #mewarrior
Our entry into @bake4mecfs for @smileforme #disneybaking #fantasia #suchfun 😂 💙
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Sorcerers Hat Cupcakes 🧁 in honour of #merryncrofts baked with support by my partner while I thoroughly enjoyed revisiting Fantasia – what a masterpiece!
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WWW.BAKE4MECFS.COM – all levels of baking & ages welcome 🙏 🤗 & encouraged. What will you bake?
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#mecfs #mecfsawareness #baking #bakersofinstagram
Jess (Author) has ME 🦋 She refers to it as a monster 👺 & uses her diary 📔 (nicknamed bug 🐞) to record her experiences….
The neglect & abuse is rife throughout & hard to stomach.
🤢
But, we can’t keep turning a blind eye 👁️ because we don’t feel comfortable with the truth… @nhsengland
Jess (with her extraordinary creativity) finds light 💡 🕯️- her ability to create “hope” under such circumstances is admirable 🙏
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I implore you to read this book 📖
👆
NOT just because it educates on a cause I fiercely support #severeme
BUT because it’s also a very good read 💙 💙
The pacing is on point while it confronts this dark side of our “care” system; characters are 3D & Jess (with the magic 🪄 of her voice 🎤 🎨🖌️👩🎨) represents those who desperately need it ❤️
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Jess is a fighter 💪 & refuses to be a “victim” but she’s in a vulnerable position & taken advantage of 😔
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My YouTube is called The Monster In ME. There’s something uniquely demonic about this neuro-immuno disease 🦠
… It keeps the victim prisoner & if you do NOT have “good” people (constantly) around you, it can be dangerous. Very dangerous.
Jess is clearly blessed with a supportive family but when they’re not at her bedside 24/7, other monsters (sick bastards) see an opportunity.
Sometimes the pain & debilitation is constant & severe with ME. Other times it has a propensity to toy 🧸 with ya… dares ya to attempt to live a normal (ish) life… tempts you to create a memory with a friend/loved one… then comes down on your soul like a ton of bricks 🧱 & confines you to the bed; inflamed & in agony 🔥😖
Jess had a flu-like illness 🦠 & never recovered like many #millionsmissing – history has been on repeat 🔁 for far too long #LongCovid #medicalmisogyny
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From the walls of her dark bedroom she’s eventually taken to hospital; a place which is meant to help you heal… be safe… far from it…
Jess is only 15 years old – she’s barely lived a life when she’s struck. There’s definitely a coming of age feel to it but not as you’d expect.
The style is chatty & super easy to read!
Jess should never have had to experience what she did in our NHS hospitals. At any age. No one should. Please read!
💥 #blackcake “A symbol of joy and togetherness; a vibrant, delectable part of Caribbean culture.”
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Loved the 📺 & 📖 just as much ❤️ Complex storyline BUT executed v.well. Coventina (also later known as Eleanor) is our resilient 💪 protagonist & she’s actually dead. Yep. You read that correctly. Moreover, plot twist – she has “died” more than once…
Set between Jamaica 🇯🇲 (unnamed Caribbean island 🏝️ ) England 🏴 Scotland 🏴 Italy 🇮🇹 & Florida 🌺 – I had a mini virtual holiday. What’s not to love?
At the ♥️ it’s about identity & excavating the past #familysecrets but def not ya average family drama 🎭 A bounteous narrative hopping from one gen to the next & one country to another 🌍 with a murder mystery rotting back on the island 🏝️
Before Covy dies (properly… like for the final time… 😂 cos death is final, right?) she makes a tape for her kids… her daughter (Benny) & son (Byron) aka B&B… siblings who’ve become estranged are brought together…
We all get booted head first into a rocky ocean 🌊 – drown, swim 🏊♀️ backflip (kick & scream?)🐬 😂 Splish splash 💦
The author catches (with profound precision) what it is to be human; the tragedy & the beauty of life 🏄♀️ Surfing & swimming are two of the sports highlighted. The latter of which I’m a big fan #swimming #openwaterswimming
Abandonment, domestic violence, rape, tradition, migration, estrangement & racism…it’s a rollercoaster of important & intense themes;
Environmental awareness, LGBTQ & Black Lives Matter are also firmly planted at its core.
Gambling addiction, alcoholism & I loved the powerful sentences swirling through this book 📚 💫
Clever. Very clever. I cannot write a review with out acknowledging the fierce friendship between Covy & her swim pal, Bunny 🐰 A multitude of engaging & interesting characters (Covy’s Chinese father Lin the gambler, Little Man the gangster & Pearl the kind-hearted surrogate Mother, just to name a few)
WATCH it & READ it & BAKE @bake4mecfs
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#bookrecommendations #baking
Thank you @bake4mecfs 💙✨
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Quick croaky voice over from bed 🛌 from me 💩 but gets the message out there! We really do want to ensure #pwme can join in – #mecfs #mecfsawareness #severeme
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Over the years we have had some fantastic collaboration bakes! And I look forward to more. After all, we need healthy folk on board to fight the good fight 💪 & #baking for @bake4mecfs @smileforme is part of that!
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Thank you sincerely to our incredible judges for their time & supporting this 🥰 & all of their personal advocacy too! @lmcfindy @wordsasmedicine @aliceeewright 💥
Did someone say #suchfun @themirandashop @realmirandahart 💥 #entertowin #bakersofinstagram 🙏💙
You know who’s put that smile 😃 on my face?! The lovely @aliceeewright @smileforme featured in the 2nd half of the interview with Clare & Amy; LINK in @jenniejacques1 bio to FULL interview (jenniejacques1 YouTube The Monster In ME)
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You can learn more about #merryncrofts & #merrynssmileday with the incredible charity SMILE FOR ME who send gifts 🎁 to nominated carers & #pwme – to add TODAY is Merryn Crofts birthday 💙 We sadly lost Merryn just 10 days after her 21st birthday 🥳 she most certainly will not be forgotten… #severemewarrior
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@bake4mecfs & @smileforme are working together with “The Disney Bake Off,” in honour of Merryn Crofts… so if you’d like to join in just
visit WWW.BAKE4MECFS.COM
– it’s very simple steps – you basically donate & tag your photo of your bake 💙 🧁 #baking #disney
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We truly want everyone involved who’d like to be, so we also offer a COLLAB Baker (baking buddy!) system which means if your #chronicillness prevents you from participating, we’ll find a baker to create what you would’ve baked if you could! 😉 Check the website for more INFO!
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#lovelanguage #gifts #smile #smileforme #mecfs #mecfsawareness #vikings #jenniejacques #youtube #severeme
Morning/Afternoon NOT what I had planned (AT ALL) for #meawarenessday – but at least I can do bits from my bed 🛌 & my curtains are open & I can hear the beautiful birds tweeting 🌈 plus I’m really enjoying being able to be part of @thechroniccolab protest from bed 🛌 too!
💙
I had wanted to put my #makeup on, paint my nails 💅 blue & wear my dress 👗 to make a video with my BIG camera 🎥 #canon5dmarkiii & encourage people to join in the Disney bake off @bake4mecfs with @smileforme in honour of #merryncrofts who we sadly lost to #severeme in 2017… please watch the interview (LINK in my bio) to learn more & help us by signing the open letter by @mefoggydog
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I always try hard to keep my sense of humour during the harder times & have faith that I’ll be back on my feet 💪 but it’s vital to be mindful that I’m at the “milder” end (even though it is still life altering) & moreover I do get respite between flare ups… for some this is severe & constant… & they’re the heroes I aspire to when I can’t find my humour.
I will fight for ALL #pwme when I can. Please know, you’re always on my mind 💙
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Secondary depression can unfortunately be inevitable with an illness such as this & many others #heartdisease #stroke #parkinsonsdisease – & suicide risk, drastically increased. This isn’t nice to talk about but #pwme even look (very seriously) into assisted dying & some go through with it – not because they want to die but because living with #mecfs can have such a low quality of life.
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We need your help & support to make change & fund the science behind this – I champion @polybiorf & @decodemestudy 💥
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And watch this space… because I will be back 🔥 👀 #terminator 😂 & it’ll be dolled up in my blue dress 👗 as planned!
For the media outlets @thechroniccolab we demand;
ACCOUNTABILITY re The PACE Trial @GeorgeMonbiot @davidtuller1 @PeteJudo 💙
JUSTICE for deaths & the #MillionsMissing – START small say sorry & END big with CHANGE
FUNDING pushed to good science @polybioRF @DecodeMEstudy 💙 #mecfs #mecfsawareness
Vikings vs Game Of Thrones 😂 vs Disney 💫 #mecfsawareness
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LINK in my bio to WATCH full interview
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Trigger Warning ❕heartbreaking 💔 #medicalnegligence – despite our moments of choosing laughter over tears 😭 watch & you’ll understand
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ALL people – inclusive of #vikingsfans #gameofthronesfans & #disneyfans 😂 – we NEED you (truly!)
*please WATCH this interview & SIGN ✍️ the letter ✉️ by @mefoggydog in the description on @jenniejacques1 YouTube Channel; The Monster In ME*
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We lost #merryncrofts aged just 21 years old to #severeme & I had the honour (& horror) of speaking to her Mum (Clare) & sister (Amy) about how their loved one was “cared” for in hospital 🏥 by our #nhs @nhsengland
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History is sadly on repeat 🔁 & your help is urgent ‼️ & hugely appreciated
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#pwme you may want to check out #theramseyresearchfund @meassociation to see about donating your brain & spinal cord to post mortem medical research 💙
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Our Disney bake off in honour of Merryn with @smileforme is over @bake4mecfs WWW.BAKE4MECFS.COM
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#mecfs #longcovidawareness #lymedisease #postviralfatigue #pots #eds #chronicillnessawareness #disney #gameofthrones #vikings #baking #bakersofinstagram
Everyone is 🙏 encouraged to enter #bakinglove in honour of #merryncrofts who we lost to #severeme in 2017 💫
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WWW.BAKE4MECFS.COM
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To enter your #disney bake just donate via our website & tag 🏷️ @bake4mecfs 💙🙌 our fabulous judges eagerly await the #disneymagic
‼️LINK in my bio. To watch FULL interview
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A heartfelt 💔interview to give the voiceless a voice #mecfs #mecfsawareness #merryncrofts #severeme with Merryn Crofts Mum, Sister & Friend @smileforme @aliceeewright
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SHUT UP 🤐 YOU STUPID WOMAN 👩
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Medical misogyny, abuse, neglect… we will not continue to be silenced
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#millionsmissing #longcovidawareness #lymedisease #pots #eds #chronicillness #postviralfatigue #mecfswarrior #spoonie #change #ebv #disney #baking
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Please 🙏 join in the Disney Bake Off in honour of Merryn @bake4mecfs WWW.BAKE4MECFS.COM
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@bbcnews @bbc @itvnews @itv @sajidjavid
@jenniejacques1 YouTube has a new playlist thanks to @emzfitofficial
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ME before M.E.
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#sports #running #swimming #ocrtraining #boxing #boxingtraining #sportsvideography #epilepsy #epilepsyawareness #emzfit #fitness #healthiswealth #throwback
Huge thank you to @sajidjavid & other MP’s 💪 for supporting #me #mecfs in the parliamentary debate yesterday; no date commitment for the plan but certainly validating the #millionsmissing & our fight for justice
💙
Excerpt addressing the non adherence to #niceguidelines by #nhs hospitals which directly bleeds into the current cases (& many more) of #savecarlaslife #savemillie #karengordon @mefoggydog @thechroniccolab
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How many more young lives must we lose before the neglect & abuse is clamped down on? Ignorance is not an excuse.
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FULL #medebate May 2024 available on @jenniejacques1 YouTube; link in bio & will add to LinkTree also.
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Definitely worth a watch for healthy folk as we desperately need your support & there’s a wealth of information presented across the board here about #mecfslife & the severity of this disability & situation; it’s criminal.
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I was disheartened the infamous PACE trial avoided a specific mention & ergo any responsibility/accountability but the biggest medical scandal of the 21st century will be revealed in time; mark these words.
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In line with #meawarenessmonth #meawarenessweek we will soon be launching the #disney bake off with @smileforme to honour #merryncrofts who we sadly lost to #severeme in 2017 only 10 days after her 21st birthday 🎂
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I am posting this with a sprinkle of pixie dust for all #pwme to remind you we care & we are fighting hard to be heard 💙 #millionsmissing #chronicillnessawareness
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The full interview with Merryn’s mum & sister will be launched on @jenniejacques1 YouTube in good time, so please stay tuned & my lovely chat with the wonderful Alice @smileforme 💙 too
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For this particular #baking round @bake4mecfs all donations made will go to #smileforme to continue to fund #merrynssmileday sending gifts 🎁 to people with #severemecfs
I am re-posting this video message from Pierre (Carla’s father) in hope that it will touch your heart ❤️ & for now to replace the distressing footage with this deeply felt message
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We are hoping sincerely that
you’ll take just a moment of your time this weekend to sign our open letter ✉️ – link in my bio; only your email & name is required.
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Please 🙏 help #pwme get better “care.” This is totally unacceptable. We desperately need healthy people to come on board 💥
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#severeme #mecfsawareness