Home Actress Daisy May Cooper HD Instagram Photos and Wallpapers July 2024 Daisy May Cooper Instagram - Thankyou so much to everyone who has donated to little edward. Was sent this video from his family. You are all so bloody incredible. If you can't donate please share so we can get this bubba the help he needs. LINK IN BIO

Daisy May Cooper Instagram – Thankyou so much to everyone who has donated to little edward. Was sent this video from his family. You are all so bloody incredible. If you can’t donate please share so we can get this bubba the help he needs. LINK IN BIO

Daisy May Cooper Instagram - Thankyou so much to everyone who has donated to little edward. Was sent this video from his family. You are all so bloody incredible. If you can't donate please share so we can get this bubba the help he needs. LINK IN BIO

Daisy May Cooper Instagram – Thankyou so much to everyone who has donated to little edward. Was sent this video from his family. You are all so bloody incredible. If you can’t donate please share so we can get this bubba the help he needs. LINK IN BIO | Posted on 12/Nov/2020 13:18:07

Daisy May Cooper Instagram – All 50 videos have sold out! Thankyou so much to everyone who bought a video and also to those whove donated! To all those who have bought a video , you should receive it at some point today or tomorrow The most amazing thing is we’ve managed to raise 10k for disadvantaged children. What a bloody incredible gift that is. THANKYOU ALL SO MUCH X X X X X X
Daisy May Cooper Instagram – This little bubba needs our help. Please find it in your hearts to donate and share, (link in bio) . If each one of my followers donated 2 quid we could change little edwards life ❤ ♥ Edward who was born on 7th September 2020 and diagnosed with Spinal Muscular Atrophy (SMA) type 1, at 7 weeks old on 29th October. Our world has been turned upside down, in the most extreme way. Edward has brought purpose to our life and makes each day shine in the brightest way possible. He is the most beautiful, happy baby and it breaks our heart that he has this condition. Spinal Muscular Atrophy (SMA) is a rare, genetic neuromuscular condition causing progressive muscle wasting (atrophy) and weakness leading to loss of movement. This may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing. There are different forms of SMA and a wide spectrum of how severely children and adults are affected. We live in the UK and there is a treatment available called Spinraza, which increases survival motor neuron (SMN) protein production. We are extremely grateful to have this treatment available to us, as only a few years ago, babies with SMA did not have this hope and would likely not live to reach the age of 2. Although we have this treatment option available, there is a new pioneering much more advanced treatment called Zolgensma. Zolgensma is a gene therapy medicine for treating SMA. It targets the genetic root cause of SMA with a one-time-only dose and replaces the function of the missing or nonworking survival motor neuron 1 (SMN1) gene with a new, working copy of a human SMN gene. It is currently only available in the USA and with a large price tag, ÂŁ1.2m! We are reaching out to our family, friends and the general public to help us raise funds to get our son this life saving treatment. This can be done by donating, sharing our story to everyone and anyone you know, setting up fundraising ideas or events – whatever you can do will be truly appreciated. We can’t do this without you and will be eternally grateful for any donations or support, large or small.   Zolgensma will give Edward the best chance to live a fulfilling life. From a Mum a

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