There’s a lot i haven’t shared with you about the current state of my health, primarily because my news has mostly been sad… April 19, 2007 i gave birth to my living guardian angel… in the past month with kuya josh back in the 🇵🇭, and because of several vaccines i needed to be given- bimb kept me company while i quarantined… ayokong sirain ang dapat good vibes sa 17th birthday ni bimb BUT i also know for all those praying for us i owe you the TRUTH. Padaanin lang natin please ang April 19 (happy birthday to our beloved @chinitaprincess 🥰)… To bimb, “i’m keeping the promise i made to you- September 28, 2018 when we first knew there was something scary about my sudden weight loss and my complete blood test result. i’m sorry for showing weakness yesterday when i cried nonstop because of my fear that i may not be around to be with you on your 18th birthday- it’s my bad for not being grateful that against all odds, with 5 autoimmune conditions, 3 of them that are life threatening i failed to see the glass as being half full BECAUSE you’ve matured so much and you’re always ready to help my nurses, and though i know you’re also freaked, you still show CALM & absolute FAITH in God when my BP and heart rate reach scary high numbers. No matter how much physical pain i endure daily- my heart overflows with love because of your caring, selfless, unconditional LOVE.” My one wish is for your character to remain STRONG, your values and integrity stay ADMIRABLE, your respectful and polite manner UNCHANGED, and your passion for learning will continue to inspire you to make the most of your education. I LOVE YOU not only during my lifetime or yours BUT definitely for eternity. You’re my greatest achievement because of your capacity to love- this early you’ve embraced your responsibility to take care of your kuya, and since you were 11 years old, you’ve been so protective of me. Love doesn’t die my 🍯, please remember that. HAPPY BIRTHDAY to the love of my life.
i choose to be 100% honest. i arrived in the 🇺🇸 with 3 diagnosed autoimmune conditions, a 4th was confirmed in late June of 2022 (1. Autoimmune Thyroiditis 2. Chronic Spontaneous Urticaria 3. Churg Strauss/EGPA- a rare, complicated form of vasculitis 4. Systemic Sclerosis and this 2024 i was diagnosed with 5. SLE/Lupus and 6. Rheumatoid Arthritis.) We are still waiting for the results of 2 more autoimmune conditions. I thank all of you for your prayers. MARAMING SALAMAT PO SA INYONG PATULOY NA MALASAKIT AT SUPORTA. The reason i decided to go home is because i need to start my second immunosuppressant infusions in 2-3 weeks (it’s a gentler term for chemotherapy). Emotionally i need the encouragement and unwavering faith my sisters & cousins, closest friends, and trusted team of doctors can provide… sadly what was the BATTLE TO IMPROVE MY HEALTH is now THE STRUGGLE TO PROTECT MY VITAL ORGANS. This is now the FIGHT OF MY LIFE. There are so many i wish to thank, our OC friends who became our adoptive family. The @flypal team, my 2 Fil-Am close friends Dr. Henry & Dr. Titus, and MY Dr. MP, my 3 best friends @michaelleyva_ , @lenalonte, and @annebinay (kuya josh is staying with ANNE for a few more weeks), my FILAM nurses (Mike, Cara, Patricia) and my source of strength, and God’s biggest blessing, my “BIMB”. They are flying home with me. A longer gratitude post when we get home. Bawal Sumuko. Tuloy po ang #Laban.
My story. My life. My new reality… #bawalsumuko #tuloyanglaban #lovelovelove
My story. My life. My new reality… #bawalsumuko #tuloyanglaban #lovelovelove
My story. My life. My new reality… #bawalsumuko #tuloyanglaban #lovelovelove
My story. My life. My new reality… #bawalsumuko #tuloyanglaban #lovelovelove
My story. My life. My new reality… #bawalsumuko #tuloyanglaban #lovelovelove
My story. My life. My new reality… #bawalsumuko #tuloyanglaban #lovelovelove
My story. My life. My new reality… #bawalsumuko #tuloyanglaban #lovelovelove
Exactly 2 weeks ago, i had an Ultrasound guided PICC LINE INSERTION, the minimally invasive surgery was done in Makati Medical Center. I would like to thank everyone in MMC for their genuine concern for my safety & wellbeing while confined- from those in the OR, all the doctors & residents who were monitoring me, the nurses in the 9th floor, and the security team- MARAMING SALAMAT sa INYO! I always try my best to highlight the positive because having 6 autoimmune conditions is depressing (hindi po ako nagkamali, in my last update i had 5 diagnosed autoimmune disorders, but just like the Pop Mart Care Bears na 6 ang laman given to me by my new friends @rouge_and_orange #6 is the supremely punishing RHEUMATOID ARTHRITIS)… this picture was taken by my pain management doctor, @rainiertanalgo. In the picture you can clearly see my adopted younger sister immunodermatologist @drkatcee who is stressed with my ever growing list of medicinal and food allergies; partially seen was my excellent vascular surgeon Dr. James Illescas, not pictured is our family’s trusted anesthesiologist Dr. Jonnel Lim who crossed the “border” (again thank you MMC for saying yes to our request) and clearly visible is surgeon Dr. Mike Padlan. (Pinangalanan ko na po sya). Kahit gaano katapang ako, there are moments especially pag nagsabay sabay my unexplainable allergies, my lupus (rashes, fever like heat in my entire body, migraine) and rheumatoid arthritis flares (the worst, stabbing/crushing deep bone pain in my knees, hips, ankles) plus my high blood pressure (170/116); i ask myself KAYA KO PA BA? During my hospitalization, my WBC dropped… i also had a bad allergic reaction to the last antibiotic i could still tolerate. What did that mean- wala na kong panlaban sa kahit anong viral or bacterial infection. I’m now in isolation. So many rules for family & friends na gusto akong dalawin. Yes, it’s lonely. What keeps me going? I REFUSE TO DISAPPOINT ALL THOSE PRAYING FOR ME. Ayokong maisip nyo na binalewala ko yung time & effort ninyo. Because your compassion has deeply touched my heart. Kaya #bawalsumuko #tuloyanglaban 🌈
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
i want to thank all my friends for taking time to greet me last night (asalto) and my friends from OC, who flew in. But above all- i thank you for being with me, kuya josh, and bimb during my journey towards recovery.
To my most trusted friend, @annebinay who celebrated her birthday Mother’s Day together with her Ate Sen. @nancybinay- thank you for being so welcoming to kuya josh & making him an adopted member of your clan. Hello to Lolo VP and to Lola Doc. It’s been a “test of courage” type of weekend- i had a consultation w/ a 4th doctor in UCLA, this time a cardiologist. It’s the start of Mothers’ Day here and moms have never been cowards. In this instance, please help me pray for good health for all moms and a very “Brave Heart” for yours truly (Details when i’m ready & when my complete test results are in.) Anne, the best friend anyone could wish for- THANK YOU for the unwavering love for kuya, bimb, & me AND for keeping all my secrets close to your chest.
